Neurosarcoidosis

[QUADBOY]

Hi All, This is a tale of a guy aged 37yrs of age and over hundreds of dives under his belt has just been diagnosed with NEUROSARCOIDOSIS.

To start at the begining i had a Stroke 9 weeks ago and they could not find a Bleed or a Clot so it had to come from somewhere. Nine weeks on 30-40 blood tests CT scans MRI scans and Heare echo no luck then they came up with this.

The reason i am asking is i have all the info on the condition and that i now have this for life, what i am asking is have you or do you know of any body who still dives with the condition as my Doctor is not 100% as for me to dive again. This will probabaly take 18 months to 2 years to fully get over so its not like i want to dive this week end just that little light at the end of two years .

Many Thanks and hope you guys will be a great help.

[Nick_lincoln]

I'm not a medical professional or even remotely qualififed in this area. But my Grandfather had this condition - 'Sarcoidosis' anyway. Is this different to 'Neurosarcoidosis'?

All I know is what I saw and what I was told by family - it made him progressively less mobile over a period of 20-25 years. I dont know if medicine has moved on since then, if so it may extend mobility.

Edit - surely your GP should be able to advise on mobility and diving with this condition??

[uwila]

Originally Posted by Nick_lincoln

I'm not a medical professional or even remotely qualififed in this area. But my Grandfather had this condition - 'Sarcoidosis' anyway. Is this different to 'Neurosarcoidosis'?

All I know is what I saw and what I was told by family - it made him progressively less mobile over a period of 20-25 years. I dont know if medicine has moved on since then, if so it may extend mobility.

Edit - surely your GP should be able to advise on mobility and diving with this condition??

Such faith in our GPs. I'm not knocking them, but the majority have no idea what additional problems diving generated. As an example, I was cleared to dive (back when I was a newbie) with 2 fractured ribs "as long as I could manage the pain." Imagine what could have happened if strenuous effort underwater had released a bone chip ...

You really need to check with a hyperbaric doctor, or maybe ask DAN - they give a very good service for medical questions.

Cheers, Chris

[Fiona]

Hiya Matey

I was shocked on Sunday when you told me. Still am.

Take care of yourself and see ya soon.

Fiona x

[Dave Crampton]

I second what Chris said,

GPs see a little bit of nearly everything. Thay are not all specialists in any one subject. Josie's step mother is a GP, and at 60 she's got some years of experience. When i questioned her about diving related physilolgy (not any diving related illness or injury) she was not so sure of some of the facts we take for granted that we know.

Do as Chris says. Try and contact a specialist. Good luck and I hope this give minimal disruption to your hobby.

Dave C

[QUADBOY]

Many thanks for all the info and will keep in touch with what the so called specialist says nex week.

[BobK]

Yet another vote for what Chris and Dave say.

If you want any diving related advice from the medical profession you MUST go to a hyberbaric doctor.

Lets just say, that somebody very close to me, twice had pulmonary odema, brought on by diving. The two incidents were separated by a number of years.
In both cases, 'ordinary' specialists told her she was 'fine' and could go diving, there would be NO problem.

Luckily, she thought this was too much of a co-incidence, and went to see a hyperbaric doctor. He thought differently from the 'other' specialists, and she is now restricted to a depth of 2m. But at least she is still alive.................

I have seen to many people, who have medical problems, and are desparate to get back in the water, spend hundreds of pounds getting 'pronouncements' from doctors with no hyperbaric training

[Fee]

Hi
definitely needs diving doctor review - as you are no doubt aware sarcoid can affect any system of the body! Good luck
fee

[wreckweasel]

register on the ocean discovery forum and you'll find some useful info on there (I think from Dr. Simon Mitchell).

The prognosis didnt seem good from what I remember, but to be honest take your advise from people who speak from knowledge... and not insomnia/rioja.