DEBRA

[Helen F H]

<font color='#000080'>Hey guys,

I dont know if any of you saw the programme on channel 4 tonight about &quot;The Boy Who's Skin Fell Off&quot;.  Basically it is a horrendous, incredibly painful, ultimatley fatal skin disease which is genetic, and the programme moved me to tears.  It was following the last months of Jonny Kennedy, including his death.  Jonny lived in my local town, and although i didnt know him, i feel i should ask you to please support the cause.  He was brave to the last, even going to number 10 to rally for the cause and getting Cherie Blair to come to future fundraisers.  He died 3 days later.

please follow this link and pledge your support.

DEBRA webpage

[peter k]

I used to work for DEBRA in their advertising. 'orrible condition that I wouldn't wish on anyone.

Peter

[Rob Evans]

Beautiful programme, very poignant. &nbsp;What the poor sod had to put up with is beyond the ken of what most of us can even imagine, but he took it all with a wicked sense of humour and never gave up. A celebration of his life and I'm richer for having seen just a bit of it.

[Fiona]

<font color='#0000FF'>Didn't see the programme but I caught some of the interview his mum did with Richard and Judy. &nbsp;Looked a terrible disease, I am sure his mum said I actually died on the train on the way back from Number 10. &nbsp;Anyway doesn't matter he seemed to have a wicked sense of humour as it showed him choosing his coffin.

[LesleySS]

Unbelievable programme, amazing guy. &nbsp;Cannot begin to imagine how a person can live a life filled with so much pain, yet maintain the most incredible sense of humour. &nbsp;Was also good for raising awareness of the condition, hopefully DEBRA will get more support now to make headway in finding treatments.